Anonymous
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Mold exposure in 2017 weakened my immune system. Then a severe flu in 2019 pushed me over the edge into full MCAS. My mast cells fire at everything now — food, chemicals, heat, stress, sometimes nothing at all. I break out in hives from my own sweat. I react to medications meant to treat the reactions. It’s a closed loop of misery that most doctors don’t understand.
My husband manages the house environment. He does all the cleaning, all the shopping, checks every product ingredient. He’s essentially my caretaker. I’m 37.
Found an MCAS specialist in Dallas after two years of being told it was ‘just allergies.’ She said my tryptase baseline is low so the standard test always shows ‘normal’ even during a reaction. She tests 24-hour urine prostaglandins instead. Why don’t other doctors know this?
This is a personal experience, not medical advice. ImACanary.com makes no causation claims.
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